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Hi MW, haven't been feeling to good the past few days, sorry about the wait in Gianna's update. Basically two more blood test were done in the past two weeks, so far all have come back fine, thank goodness for that. Waiting on results for another blood test. Hopefully this will be it on blood work for awhile. I have changed Gia's doctor, this one is much nicer, and much more empathetic towards me and my baby girl. (still trying to convince insurance to allow me to go to CHOP, it's not an easy process), we changed to another medication for her head, we have to wait 4 weeks to see if there is any change in the hair growing back. Gianna thankfully does not have to go back to the doctors untill the end of the month. She is such a brave and good little girl, her smile and heart inspire me everyday, this has been tough to go through with her, however at the end of the day she is happy, and the words "mommy I love you" makes it alittle easier to handle. Thank you again for all of your love and prayers and support.