Little miss tonight! Had to escape reality for awhile! Her MRI went well on Monday, even though the results weren't what we were hoping for! Her left kidney is absent, her sacrum ends at S2, instead of S5 like its suppose too, she has type 2 split cord malformation and her bladder is enlarged with trabeculation! And the most frustrating part is that all of that went undected and overlooked in numerous prenatal ultrasounds! She is scheduled to see an urologist to confirm that she will need surgery to correct the hydronephrosis on her right kidney, that I forget to mention has gone from mild to moderate! She is in good spirits and I am trying to take everything in! Thankful for Disneyland , where I can forget about reality for awhile!
She is a sweet baby and I am praying for her. Lord, we know You can do anything You want for us if it is Your will for our lives, so I ask you to please heal this little one, with a smile so bright as hers, she is truly Your child. Help her mommy and family feel Your presence and guidance and peace in all the days ahead. Love them forever Oh Lord, in Jesus's name I pray, Amen. Truly, she is a little sweetheart!!Don't give up and congrats on being such a good mommy to her!!:) - secretagentangel
670.2 #154 8:52PM
Oh wow.. I understood every bit of those diagnoses. Sometimes things aren't what we expect them to be, but we learn to deal with what we've been handed in life with prayers, love & support from others. MW is more than just wait times.. a ton of us are here for each other when we're going through a difficult time (: Prayers that you and your family get some answers. It's obvious that Disneyland brings her spirits up, I hope you all are able to take her back to the parks to enjoy! - Jacqueline
546.7 #205 12:30AM
What's cuter than a little one on a carousel with the castle in the background??!!?!! Good luck with her medical issues. - tschoolitz
6.6 #8493 8:46PM
God bless you and this sweet little angel! My thoughts and prayers are with her and your family! - ShariRenee
1562.4 #50 8:46PM
She and your Family will be in our prayers - HanLostLeia
1092.6 #76 8:58PM
May the angels protect her and give you the strength to stay positive and strong! - MarshaMouse
2871.6 #15 9:00PM
My heart goes out to you and your family. I'll keep you guys in my prayers. - sallyg
217.1 #1397 9:03PM
I am so sorry you all are having do deal with this. She is really quite adorable. I am glad that God blessed you with a place to escape. I will be praying for your strength , and her healing. Thanks so much for the update! Hang in there! - 7mouskedoodles
161.1 #2137 9:43PM
Thank you for sharing. Our prayers go out to your family and beautiful daughter. π - RadiatorSprings4Ever
136.9 #2492 9:54PM
God bless this beautiful girl. Your family is in my thoughts and prayers. - JRDrummer_CM
792.8 #119 10:03PM
Thank you for the update. I've been thinking about you guys. Prayers are with you. I know this is so hard. Just remember to concentrate on your family. Love can get you through. I'm confident this little beauty has a lot to teach the world. - sewedna
86.7 #3193 10:10PM
I'm so sorry. I've been there, our daughter disneygirl19 had her first surgery at 10.5 months. Kids heal FAST. My prayers for her, your family and medical team. DM me if you need a listening ear. - PrincessDuckie
588.4 #188 10:12PM
My heart really goes out to you, very sorry to hear this! I am so glad you enjoyed your day at the parks. Best wishes!! - MinnieMousewife
570.4 #194 10:13PM
She is such a cutie. I hope nothing but the best for you guys. - Hendizl
1313.0 #61 10:15PM
My positive thoughts your way for strength to endure this trial and love to surround you and your little one - DumboGal70
86.0 #3201 10:31PM
She is such a doll. Sending all my pixie dust and uplifting thoughts your way. - chipanddalefan
527.1 #218 10:43PM
Glad you both had a fun day at the parks today. Thanks for the update...sending prayers and pixie dust your way and to your sweet little angel too. - DisLUVney
334.0 #455 10:52PM
God is good and can do anything. You and your family will be in our prayers. I know the fear and frustration you are feeling. We find out Nov 4 if our youngest son needs brain surgery. Disney is definitely a perfect escape! - Disneycrazymom
99.5 #3041 11:00PM
God bless you guys!π
Special prayer for your little man too! - RadiatorSprings4Ever 136.9 #2492 11:40PM
She is such a cute little girl! I'm glad you got a little Disney fun. Stay strong and know you have a lot of people lifting you up in prayer and good wishes. - piratelife4me
336.6 #446 11:33PM
Awww, bless her heart, what a cutie! You are in my thoughts and prayers. - ElectricMayhemMom
312.3 #547 11:47PM
Awww. What a sweet smile and I love the way that she's petting the horse! My thoughts and prayers will be with her and your family - that you all get through this and can spend many, many happy years making memories just like this one! - msdizmaui
519.0 #223 12:55AM
Sending a lot of positive thoughts, prayers, and pixie dust β¨πβ¨π May the doctors be able to help your beautiful baby in order to get her kidneys to be working at their best. God bless your little angel, she is absolutely adorable and I see how happy she is on that carousel with the castle in the background. You are a great mommy for giving her an escape and may God give you the strength you need to continue pushing you to be that pillar for your baby - SarahJoshDisney
69.5 #3418 5:17AM
She is a beautiful, sweet, and special little girl. May God bless you and give you all the strength you need. As a mother my heart breaks to know you have to go through this with her. PTL that you have something to make this time easier for you all. Keep enjoying Disneyland. - Mrs.mouse
420.8 #306 6:21AM
More love, hugs and thoughts from NorCal β€β€ - HandMeAChurroImmaFaint
1802.5 #42 9:10AM
Sorry to hear you have to go through all that :( glad you have DL to have some moments of joy though. Thoughts and prayers to you!! - brodysmommy
243.7 #1066 9:15AM
She's a precious girl and that's a beautiful picture. I'm so sorry for all you're going through! - MamaRoo
350.2 #412 10:02AM
What a cutie! Praying for you and your family during this hard time. No little one should ever go through something like this. Best wishes in all upcoming procedures! - LuvsMimisHouse
111.9 #2887 10:21AM
My heart goes out to you. I am sending you and your little Miss all the well wishes and prayers. Her smile says volumes. And with the love and support of family, she will come out winning! - Willierose
1194.1 #68 10:22AM
What a beautiful little girl. We are praying for you guys. - Henny
9.7 #6860 10:36AM
Hope u and your family had a great time, your little is absolutely beautiful - Minnie4
4.5 #11516 11:30AM
Thank you everyone for the kindest and most heart felt messages! Your love & support will help me get through this difficult time! - blondemommy
215.4 #1414 7:24PM
Oh again so sorry for all of this π’poor beautiful baby girl. Lots of love to her and you. - PinkElephants
636.8 #170 7:32PM