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 27.0 #5741 (DL Qual #3231

Jun 19, 2012 12:08 PM  The Hub
Our Dearest Mousewait Family, I would like to give you an update on Princess Daisy Rachel Young. First and foremost I sincerely apologize for not giving frequent updates, but this whole situation has been a nonstop rollercoaster of emotions and changes which in turn has made it extremely difficult to live a normal life, let alone report to not only our Mousewait family, but our own family and friends as well and for that I apologize. Most of my time is spent filling out forms, making numerous phone calls, following up on phone calls, waiting for phone calls, banging on doors to get an answer and or a reply and mostly being jerked around as the answers and replies seem to change on a daily or weekly basis. That being said, I would like to share with you what is going on with Rachel. Those of you who may or may not know about a month ago she was staying at rehabilitation center called Health South here in Albuquerque. She was scheduled to return home (though still very injured) on May 15th as that was when her Medicaid would kick in, however someone dropped the ball over there and when the paper work was finalized, it issued her only “Institutional” Medicaid which means that she is only covered as long as she is in some sort of medical facility, so if she went home she would lose all medical coverage, what we applied for was “Community” Medicaid which means that she would be covered outside of a medical facility. We were told by the Health South case worker that the only way to remedy this would be for her to do a 30 day stint in a skilled nursing facility in which during that time the mistake would be rectified and she could come home on June 16th with full medical coverage as her community Medicaid would kick in. A week before she was set to be discharged we started to order her equipment she we would need to return home as per instructed by the case worker (wheelchair, toilet bars, shower bars, ramps, meds, ect.). it was at this time that they informed us that we were misinformed by the caseworker at health south and that she yet again dropped the ball and forgot a to implement a very important step in the discharge process. Because of this, the 30 day stint was not to remedy the institutional-community Medicare problem, but in fact only puts her at the top of the WAITING LIST for community Medicaid. So now she has to wait 60-90 more days for her community Medicaid to kick in. At this time she may leave the facility, however she will have no coverage for 60 to 90 days while this process is pending. As desperately as we want her home, this is simply something we cannot afford to do, as she needs meds and outpatient therapy especially a certain machine that electrically stimulates her nerves to keep her legs from COMPLELETLY atrophying. To add insult to injury, during this 60-90 day process she is NOT allowed to leave the facility (we are fighting this as well as dozens of other things). Everyone there is allowed “day passes” where they are allowed to leave the facility for hours at a time, but because her coverage is pending, Medicaid does not want to allow her to leave as it will compromise or hinder the process. Basically they see it as if she is well enough to leave for a couple of hours then they feel she does not need coverage (but yet she is allowed to go home and wait for the coverage?) This makes no sense. So this is where we are with that whole process. She is still not home and will not be home till the earliest August 18th to September 18th but at this point who knows because every time we get a date we it changes. I wish they would comprehend the psychological toll this is taking on Rachel getting her hopes up and down and having to be cooped up all day in an environment of ill, and angry elderly people. As for Rachel, she is making the most of it. Through all this Rachel has maintained a positive and cheerful attitude because that is who she is! Though she is injured herself she is brining what joy she can to the residents there. She plays bingo with them she helps do their nails for them, she plays games with them and just visits with those who are lonely and don’t get many visitors, anything she can do to lighten their lives a little. Everyone there just loves her! (CAN YOU BLAME THEM? DUHH!?). She has become quite close with some of the residents; sadly one of the women there that she became very close with had lung cancer and passed away yesterday while Rachel was holding her hand. Her name was Sherri Jaramillo, and Rachel spent very last moment with her while she was passing. I like to think that Rachel kept her with us longer. As for Rachel’s progress it is there have been some highs and lows. The great news is that her left leg is getting stronger! Though she is not able to use either, she has made huge leaps forward as she can lift it a little bit and uses it to stand for a moment when she transfers out of her wheelchair!!! The bad news is that the right leg is not making any progress and on top of that it is causing a valve in her hear to slow down and not work properly which is causing erratic blood pressure and could be detrimental, but the doctors think that with exercise and proper diet it will heal (no Tigger tails for a while I guess!). In closing things are slowing down. It is possible that we may have an answer to the day passes this week as well as her custom wheelchair may arrive and she will be more comfortable and not have to continue to use the bulky 60 pound model she has now. From our family to all of yours thank you for your continuous prayers, thoughts CARDS and GIFTS words cannot express how much it means to us when she receives them!!! You are all so generous and words cannot express how grateful and moved we are by all of you. I want you to know that you all are one of (if not the biggest, after Prayer and our Lord and savior) contributing factor to the mental health and stability of Rachel! You all make her feel extremely loved and cared for and fill her life with so much hope and happiness which in turn, helps her to heal physically! Thank you all, God Bless you all and know how much we love you!!! Please continue to pray that the Medicaid process goes quickly, and that she continues to heal mentally and physically, that her legs work again so she may walk, so she may run, so she can stay all day in the sun, wandering free, just like she used to be, a part of our world, and that this Disney princess may be rescued and live happily ever after!!!! AMEN

Hi Chris and Rachel, it is not too long as it tells us everything!  Please keep fighting and we are all behind you!  and with all of us praying for you all, you know there will be a miracle still!  I think God has Rachel there as while she is trying to get better, she can give love and help those others who don't have anyone to help them.  I know being in there can be depressing for anyone so she is like a light for those people right now and it will probably help her forever to want to help them which will help her get better too!  I love you guys, and will pray the problems all disappear so Rachel can come home.  Thank you Lord for these wonderful children of Yours.  Please help all the medicaid issues be resolved and please heal every muscle, fiber, bone, everything that has been injured in Rachel and give her strength always to keep fighting to get better.  And help all those helping her to find the right way to get her home.  and thank You Lord for this, and for them being such a wonderful inspiration to the rest of here in their MouseWait family.  In Jesus's name, Amen.  We  Love you Chris and Rachel and all your family - secretagentangel  1425.2 #101 12:41PM
That's sort of a common issue....those workers are so over worked with clients. I had a cubicle next to them and their desks were covered in files. That being said, I think she is still needed there to help cheer people up and heal. She is an angel in disguise - KissDclown  1089.3 #147 8:29PM
Thank you always for the updates even when you got a full plate at the moment. I'm so sorry to hear about how Medicaid is jerking poor Rachel around at the moment. I can only imagine the frustration you must feel and Rachel is such a trooper to maintain a positive attitude through it all. I never cease to keep the two of you in my thoughts. I continually hope and pray for the best for the both of you and will continue to do so. Hang in there!! - Aquata  292.3 #888 1:11AM
Keep on fighting. She is in my prayers and gets all of the pixie dust that I have thrown her way. - Slotherini  1054.2 #154 12:19PM
I hope everything starts to work out for you guys. I will keep you guys in my prayers - B_Ryee  5.1 #16561 12:24PM
You guys are always in my prayers. Keep hope love & pixie dust in your hearts and remember you guys are missed. God works in mysterious ways keep your head up. Love and pixie dust ✨✨✨ - Singh2011  183.3 #2113 12:33PM
oh, and please DM me or duckiefan for their address, and we will send it to you if you want to send them anything! - secretagentangel  1425.2 #101 12:44PM
Hahahaha I don't know what DM means im still new to this whole thing! I want to post a picture and another update pertaining to duckiefan and many others but I don't know how? Little help??? Our address is: 10700 Academy RD NE APT# 811 Albuquerque NM 87111 - AngryDonald  27.0 #5741 12:57PM
DM is just a direct message for mw'ers to talk to each other, lookup a username and you will see DM on their options. I am glad you posted your address it helps people find it easier! you can add a comment to your post to update or you can press t e for and it - secretagentangel  1425.2 #101 1:16PM
Sorry, you can press the e for it editing your post. you can post photos but only through your phone and it has to be a new post. if you sent me an email I will send you those photos I told you about. we also took a photo at the reunion holding donald and daisy dolls t show you were there in our hearts - secretagentangel  1425.2 #101 1:19PM
Thank you for the update! I'm so sorry about the frustration that you two must be feeling, but I'm am positive that everything will be okay! I'm a believer that everything happens for a reason, so maybe Rachel is supposed to be in the facility to touch the others patients lives. Keep staying positive, and I'll keep you both in my thoughts! - ladylikesdisney  945.0 #173 12:46PM
wow! prayer and pixie dust coming you way! head up and stay strong! - wendytink  343.0 #632 12:46PM
I'm so sorry she is not home yet. I will continue to pray for her and hope she gains all the strength she needs. I will also pray for you and that you draw all the strength you need to be there for her. You are both in my thoughts always and anything you need please feel free to ask. Thank you for the update and I send you lots and lots of pixie dust! ✨💗💗💗✨ - Aurora_2020  260.1 #1173 12:49PM
What a trooper. Hang in there, you two. Things WILL get better, though it may be a slow road. Keep the faith and know the support you have beside you if you ever need it. All the healing thoughts in the world to the both of you from me and the rest of us here. Faith, trust, and pixie dust. :) - flukefan  270.5 #1071 12:52PM
Stay strong! You are both in my prayers. I'm happy to hear that Rachel is getting stronger and staying in good spirits. It sounds like God had a plan and Rachel is an angel, touching the precious lives of those around her. She is a true blessing and is showing us that we all need to remember to enjoy life and those around us. ✨🌟 - Vegan7LuvsStitch  1009.3 #167 1:18PM
I know this is easier said than done and the whole process is frustrating but try to focus on the fact that SHE WILL BE HOME. Try to focus on the fact that she is there with you and that you can see her everyday! Everything else is replaceable (money!) but not her life! She is always in my prayers, as well as her family. Stay strong!! :) - kss4tink  218.0 #1671 1:25PM
Never lose hope! She will be in my prayers and all of my pixie dust will go her way! ✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨ - Scrumpy_N_PansShadow  36.7 #5033 1:28PM
🙏 - Sugarbuzz  184.4 #2098 1:45PM
Much pixie dust being sent your way. Keep your hopes up, your faith is wonderful. ✨✨✨✨✨✨✨🙏🙏 - LoveDisneyDucklings  28.8 #5585 1:46PM
You both are in my thoughts and prayers. - mouselaw1076  37.1 #5010 1:50PM
I was just thinking of her yesterday...thanks for letting us know how she is.  I'll keep praying!! - PeachKay  311.1 #767 6:13PM
I was thinking of her this weekend and wondering what I should get her to send your way! Keep fighting! Keep being positive, and just believe it will happen - MarshaMouse  4124.3 #25 6:28PM
Sending more pixie dust & healing thoughts her way. I pray that medicaid gets their butts in gear & she'll be able to go home. We are always thinking of you guys. - VikkiMouse  182.2 #2127 6:29PM
thanks for the update. in my thoughts. (((hugs))) - HandMeAChurroImmaFaint  5193.8 #17 6:37PM
Wow. I am sorry to hear about your struggles. But the sun will shine again. Just keep your faith and you are in my prayers. This to shall pass. - PrincessAuroraMomma  527.0 #356 6:44PM
You and Ur family are in our prayers. - MickeyMouse0312  56.4 #4274 6:53PM
Prayers and hugs being sent your way! Never give up!🙏✨ - JessM4  269.6 #1086 7:29PM
Thank you for the update. Of course continued prayers and positive energy for you and Rachel. Sorry you have to go thru all this messy stuff along with wanting what is best for Rachel.I hope you received my package. It was supposed to arrive by now. - Dizkid  362.0 #581 7:47PM
Still praying! We pray often for you and Rachel! Thank you for the update! Sending love and pixie dust your way! ❤❤❤❤❤❤❤❤❤❤❤❤ ✨🌟✨🌟✨🌟✨🌟✨🌟✨🌟 - Minnis2Society  369.9 #565 7:48PM
I very much appreciate the update, I know you are busy and it was so nice of you to write this up for everyone. I am sorry about all the frustration (My family is going through this too) and I really hope things go well for you guys from this point on. I wish you all the best! - Sheilamo  318.2 #736 8:08PM
Hang in there brother. I think about you two all the time. So I truly appreciate the update. I pray the next comes with word that all of medical red tape has been sniped. I have seen this first hand and know the frustrations you are dealing with. Like I've said before you are the rock and you will stand firm for Rachel as you have. Please give her a hug and a smile for me. We all love you both never forget that. Now give'em hell bud, kill'em with kindness and take no prisoners and when you need back up we got ya. }:) - Evilstitch  338.5 #648 8:16PM
Thanks for the update. I can't imagin the frustration you and Rachel are feeling now. I'm still praying for her. Is there anything MWers can do for you? - Mrs.mouse  517.2 #365 8:18PM
(((((a big hug for you and Rachel))))). Unfortunately I've been in your situation, it's hard when you do everything you are supposed to do and it still turns out in a different direction. I know it's hard even when you keep records of conversations and commitments and later they are not honored and it seems like no one cares. But remember WE care!! Eventually things will start happening in a positive way! We will be ready to celebrate with you b ut until then please dont give up!! We care about you both so much!! Please let us know what you need and we will be there for you. Always. Do not hesitate to ask, please. Thank YOU Chris for all you do for Rachel! Please give her a big hug from us. hug for us. - PrincessDuckie  799.6 #207 8:23PM
Thanks for the update. I've had you both on my mind this past week. I can feel your frustration, and will continue to pray for a resolution to your insurance woes, for continued healing, and for Rachel's speedy homecoming. Sending you love and best wishes. - Juliebird  257.9 #1195 1:04AM
So happy to hear from you! We are all still praying everyday for Rachel and your family! You don't need to apologize to us for not being able to update us much- we all know that you need to focus on Rachel and her needs! But we all truly appreciate the updates whenever you do get the chance- as we all love to hear about her progress. I will continue to pray for you all. Hopefully the medicade (sp) stuff will get sorted out soon so Rachel can go home!! God bless you all- we love you!!💚 - Ashley1024  27.7 #5685 3:23AM
🙏 - E-Ticket  1315.8 #110 10:59PM
Been thinking of you guys. I hope you are both doing well and that Rachel is now finally home. - Pintraderswife  468.3 #412 9:56PM

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Space Mountain closed May 5-7
Haunted Mansion closed May 4-7
Indiana Jones closed April 20-May1

DISNEY CALIFORNIA ADVENTURE:

Soarin' Over California closed through May 14
Luigi's Flying Tires closed through Dec 1
 

Awesome! Can't wait! - PrincessDaisy  307.7 #799 8:33AM
Looks like redwood creek will open earlier. 3/3 I think - aud2580  10.0 #9882 3:22PM
it was open when i was there on the 4th. - MsTikiMermadam  197.9 #1927 1:29AM
I have seen so many referb schedules even the dland website has something different -- does anyone know which schedule is correct? - muggywump1  7.0 #12623 8:09AM
the dl site seems to change.  hopefully for some earlier openings. - MsTikiMermadam  197.9 #1927 12:24PM
Were visiting during the diamond celebration.  I'm so excited because all of our favorite rides will be open! - Dsc1983  10.7 #9423 10:53PM

Play Disneyland Trivia with your friends for FREE! See the list of TRIVILATOR usernames on this page. Play from any device with our new web version

Cool admin. Hope I do better than the first one. Hope people that enter will be ready to play and the tournament moves along better - Goofytom  1107.9 #144 6:41PM
I will announce the December tournament date this week. - Admin 11:58PM
Can't wait! - sawman911  670.2 #258 6:30PM
I have the app so if anyone wants to play a game with me :-) - nelcamp90  32.3 #5294 7:12PM
Just invited you to play - Goofytom  1107.9 #144 1:21PM
There should be a droid version of this. I. would love to play  - bryanjung1997  1.1 #64816 2:19PM

Get 100 Credits for staying at the Hojo Anaheim! Just fill out this form and we'll get the Credits added to your account. When you stay at the Hojo, you help us continue to improve MouseWait. Call their in house reservation number and remember to mention MouseWait--you will love everything about the Hojo!

Credits have been applied to everyone's account as of today! - Admin 11:40AM
I still have not received my credits from the birthday bash? - vegashappyhaunts  123.6 #3024 6:01PM
I just called them to price out our potential trip in June. Chris was so nice and the MW savings are phenomenal! Still waiting on work vacation approval to reserve the room!  - HNL2SFO  205.4 #1838 1:26PM
What percentage saving are we looking at for being MouseWaiters? Is it better than a AAA discount.  - MoChuck  49.7 #4481 3:57PM
- Calypso  866.7 #190 12:38PM
- E-Ticket  1315.8 #110 6:27AM
- Fantasmicfan1  1018.7 #164 10:49AM

Use this link (save it as a bookmark to make it easy) before you add things to your Amazon and MouseWait will receive 5% of your purchase! Thank you for your support!

Purchased the Voyageers book through this link so MW benefits twice  - UTDISNEYFAMILY  1604.3 #88 4:48PM
Spent $490 on it the other day - CVDisneyland  386.5 #533 12:40PM
Thank you! - Admin  5:04PM
I didn't know about this. I'll do it next time I'm going to shop with Amazon! - melissameow  23.0 #6216 3:23AM
@otilegna - pikarich  3779.4 #27 9:34AM

What if Walt never dreamed of Disneyland? What would your life be like? What would the world be like? Get Book Two of the VOYAGEERS Saga - The Great Storyteller - on Amazon. Buy the Paperback and get the Kindle version FREE! 

Thank you Admin! This book is a great read. I recommend it to anyone who is a Disney fan. Can't wait for the next one! - grumpypapa  3062.0 #39 8:38PM
Thank you for reading! - Admin  6:26PM
cant wait to read it - ebugsmama  11.9 #8835 10:32PM
I am reading the book now! It is awesome I have already read the deadliest cast member series(btw awesome books!) and also read the first voyagers LOVE THE BOOKS keep up the good work! - DisneyDudeCarsten  4.0 #21918 10:14AM
- valj84DisneyAddict  81.7 #3728 7:01AM

Disneyland unFORECAST (BETA) is here! Top MouseWaiters giving you the rundown of what's happening at the Disneyland Resort. The unFORECAST now has its own page on the web www.unFORECAST.com

unForecast for week of Monday, April 13, 2015:

CROWD PREDICTIONSpring Break is winding down as Disney reduces hours this week. The MouseWait Historical Crowd Index shows mid-70s for this week which seems about right. Crowds will be lighter than last week with Friday and Sunday being the busiest days. - Admin Apr 14, 2015 12:04PM



We have always noticed that Saturdays are better than Sundays! We always come on the weekend and say we want to leave at dinner time on Sunday, but always leave by 11-12 because there are so many people. We love Saturday!! - 1Princess3Princes  373.0 #559 5:39PM
I agree. I think it has to do with most passes being blocked - PoohSizedGuy  18.5 #6929 11:53PM
I love these posts!  I do have a question/request/suggestion...is there a way to only show the 3-4 most recent posts?  It's a lot to scroll through. @@Admin - TiggersAndTinks  122.5 #3044 5:08AM
I second this. The info is great to have, but it's too long.  - 1HitchhikingGhost  221.2 #1632 5:04PM
Thanks for these updates. I love them!  - Dizkid  362.0 #581 6:07PM
It's Dance the Magic this weekend-always adds to the crowds too!!! - TinkerSchelle  1437.5 #100 8:23PM
What is dance the magic?? - bks4lou  178.9 #2169 4:40PM
Dance studios sign up and dancers come and do a little "pre-parade" along the route. It's cute ;) - TinkerSchelle  1437.5 #100 1:05PM
@bks4lou sorry-I just saw this question ;) - TinkerSchelle  1437.5 #100 1:06PM
thank you. No worries. I just figured out how to find my old comments to see replies :)  - bks4lou  178.9 #2169 8:21PM
I'll sport my hotpants.  - Butterlina  1512.9 #95 11:54PM

Here are the Weekly Top 10 TRIVILATOR Players. Find people to play here. Play Disneyland Trivia with your friends on iOS. Play on any device with our new web version here.

1. DisneyMakesMeSmile
25.72

2. Moog
6.68

3. DisneylandOrBust
6.38

4. Goofytom
6.11

5. Tom
3.27

6. otilegna
3.08

7. richiii3
2.57

8. CoachDisney
2.08

9. Dolewhipped
1.99

10. Lolabell4
1.98

 

Yay @@Moog!!!! So great!  😁 - valj84DisneyAddict  81.7 #3728 6:28PM
You sweet thing!  You crack me up!  I'm merely an apprentice being schooled by @@Tom!! - Moog  26.6 #5776 11:33AM
Wtg @DisneyMakesMeSmile and @@Moog ;) - otilegna  2108.5 #61 7:41PM
A major compliment from someone who hands me my you know what every game, @@otilegna 😜!!! - Moog  26.6 #5776 8:05PM
Yay !!!  - otilegna  2108.5 #61 9:42AM

Here are the top 10 News Contributors:

1. BaseballMickey_CM
6854.05

2. Stitch_Legacy
5107.66

3. RickChavez
3416.92

4. ScooterMike
1962.16

5. SPandEvLover
3482.85

6. IDVandalSkipperCM
2326.13

7. caramiapoohAKAface
3561.97

8. Dave
12407.7

9. Duchess_SMK
5936.5

10. Sweet_Irish_Cream
4386.55



SEE TOP 50 NEWS CONTRIBUTORS



 
MONTHLY WAIT TIME LEADERS REAL-TIME: Thank you to everyone who enters accurate wait times--you earn MouseRank Points, Credits, worldwide fame, and wealth beyond your wildest dreams when you enter wait times at the Park (ok maybe not the last two things). Please remember to ONLY enter wait times that you have verified in person, this improves our algorithm substantially, thanks!

1. WARLOCK
222.3

2. MelodyMouse
148.93

3. ShariRenee
115.58

4. HARR_E
101.83

5. Tom
88.83

6. Tmoneysf
82.2

7. Coaster
75.58

8. Psychguy
71.67

9. dberryman
71.28

10. disneylandBOSS123
69.42

 

SEE THE TOP 100


Here are the Top 10 MouseWaiters of All-Time:

1. Coaster
15291

2. Dave
12407.7

3. Plumiegirl
8572.8

4. Tom
8440.67

5. jacdanfan
8426.69

6. goofygal
8206.85

7. uscdisneyteacher
7347.26

8. CobbPR
7032.42

9. BaseballMickey_CM
6854.05

10. Bullseye
6757.11



Thanked by:   valj84DisneyAddict  

Your Donations Help Us Make MouseWait Better!

TOP MWs of the WEEK

1.WARLOCK 120.97 #31  
2.Fantasmicfan1 108.01 #164  
3.ShariRenee 95.69 #15  
4.Tom 61.3 #4  
5.HARR_E 60.79 #36  
6.grumpypapa 59.26 #39  
7.Winnie111286 57.36 #37  
8.SorcererD91 57.08 #103  
9.MadameLeota 53.41 #57  
10.otilegna 49.47 #61  

MW Quality Top 100    Monthly Leaders   Top 100 MouseRank Leaders  Top 50 News  Monthly Wait Time Leaders


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