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Our Dearest Mousewait Family,
I would like to give you an update on Princess Daisy Rachel Young. First and foremost I sincerely apologize for not giving frequent updates, but this whole situation has been a nonstop rollercoaster of emotions and changes which in turn has made it extremely difficult to live a normal life, let alone report to not only our Mousewait family, but our own family and friends as well and for that I apologize. Most of my time is spent filling out forms, making numerous phone calls, following up on phone calls, waiting for phone calls, banging on doors to get an answer and or a reply and mostly being jerked around as the answers and replies seem to change on a daily or weekly basis. That being said, I would like to share with you what is going on with Rachel.
Those of you who may or may not know about a month ago she was staying at rehabilitation center called Health South here in Albuquerque. She was scheduled to return home (though still very injured) on May 15th as that was when her Medicaid would kick in, however someone dropped the ball over there and when the paper work was finalized, it issued her only “Institutional” Medicaid which means that she is only covered as long as she is in some sort of medical facility, so if she went home she would lose all medical coverage, what we applied for was “Community” Medicaid which means that she would be covered outside of a medical facility. We were told by the Health South case worker that the only way to remedy this would be for her to do a 30 day stint in a skilled nursing facility in which during that time the mistake would be rectified and she could come home on June 16th with full medical coverage as her community Medicaid would kick in.
A week before she was set to be discharged we started to order her equipment she we would need to return home as per instructed by the case worker (wheelchair, toilet bars, shower bars, ramps, meds, ect.). it was at this time that they informed us that we were misinformed by the caseworker at health south and that she yet again dropped the ball and forgot a to implement a very important step in the discharge process. Because of this, the 30 day stint was not to remedy the institutional-community Medicare problem, but in fact only puts her at the top of the WAITING LIST for community Medicaid. So now she has to wait 60-90 more days for her community Medicaid to kick in. At this time she may leave the facility, however she will have no coverage for 60 to 90 days while this process is pending.
As desperately as we want her home, this is simply something we cannot afford to do, as she needs meds and outpatient therapy especially a certain machine that electrically stimulates her nerves to keep her legs from COMPLELETLY atrophying. To add insult to injury, during this 60-90 day process she is NOT allowed to leave the facility (we are fighting this as well as dozens of other things). Everyone there is allowed “day passes” where they are allowed to leave the facility for hours at a time, but because her coverage is pending, Medicaid does not want to allow her to leave as it will compromise or hinder the process. Basically they see it as if she is well enough to leave for a couple of hours then they feel she does not need coverage (but yet she is allowed to go home and wait for the coverage?) This makes no sense.
So this is where we are with that whole process. She is still not home and will not be home till the earliest August 18th to September 18th but at this point who knows because every time we get a date we it changes. I wish they would comprehend the psychological toll this is taking on Rachel getting her hopes up and down and having to be cooped up all day in an environment of ill, and angry elderly people.
As for Rachel, she is making the most of it. Through all this Rachel has maintained a positive and cheerful attitude because that is who she is! Though she is injured herself she is brining what joy she can to the residents there. She plays bingo with them she helps do their nails for them, she plays games with them and just visits with those who are lonely and don’t get many visitors, anything she can do to lighten their lives a little. Everyone there just loves her! (CAN YOU BLAME THEM? DUHH!?). She has become quite close with some of the residents; sadly one of the women there that she became very close with had lung cancer and passed away yesterday while Rachel was holding her hand. Her name was Sherri Jaramillo, and Rachel spent very last moment with her while she was passing. I like to think that Rachel kept her with us longer.
As for Rachel’s progress it is there have been some highs and lows. The great news is that her left leg is getting stronger! Though she is not able to use either, she has made huge leaps forward as she can lift it a little bit and uses it to stand for a moment when she transfers out of her wheelchair!!! The bad news is that the right leg is not making any progress and on top of that it is causing a valve in her hear to slow down and not work properly which is causing erratic blood pressure and could be detrimental, but the doctors think that with exercise and proper diet it will heal (no Tigger tails for a while I guess!).
In closing things are slowing down. It is possible that we may have an answer to the day passes this week as well as her custom wheelchair may arrive and she will be more comfortable and not have to continue to use the bulky 60 pound model she has now. From our family to all of yours thank you for your continuous prayers, thoughts CARDS and GIFTS words cannot express how much it means to us when she receives them!!! You are all so generous and words cannot express how grateful and moved we are by all of you. I want you to know that you all are one of (if not the biggest, after Prayer and our Lord and savior) contributing factor to the mental health and stability of Rachel! You all make her feel extremely loved and cared for and fill her life with so much hope and happiness which in turn, helps her to heal physically! Thank you all, God Bless you all and know how much we love you!!! Please continue to pray that the Medicaid process goes quickly, and that she continues to heal mentally and physically, that her legs work again so she may walk, so she may run, so she can stay all day in the sun, wandering free, just like she used to be, a part of our world, and that this Disney princess may be rescued and live happily ever after!!!! AMEN
Jungle Cruise closed Jan 7-9
Matterhorn Bobsleds closed through May 15
The Many Adventures of Winnie the Pooh closed Jan 12-April 2
Haunted Mansion closed Jan 12-22
Davy Crockett's Explorer Canoes closed Jan 12-April 2
Splash Mountain closed Jan 12-April 2
it's a small world closed Jan 26-Feb 5
DISNEY CALIFORNIA ADVENTURE:
Pacific Wharf Cafe closed through Feb 5
Boudin Bakery Tour closed through Jan 26
Soarin' Over California closed through May 14
Taste Pilot's Grill closed through March 12
Redwood Creek Challenge Trail closed Jan 20-March 12
Grizzly River Run closed Jan 20-Mar 19
Get 100 Credits for staying at the Hojo Anaheim! Just fill out this form and we'll get the Credits added to your account. When you stay at the Hojo, you help us continue to improve MouseWait. Call their in house reservation number and remember to mention MouseWait--you will love everything about the Hojo!
MONTHLY WAIT TIME LEADERS REAL-TIME: Thank you to everyone who enters accurate wait times--you earn MouseRank Points, Credits, worldwide fame, and wealth beyond your wildest dreams when you enter wait times at the Park (ok maybe not the last two things). Please remember to ONLY enter wait times that you have verified in person, this improves our algorithm substantially, thanks!
Credits Hall of Fame. This real-time list honors the top Credits purchasers by showing the total number of Credits purchased. These MouseWaiters play an integral part in helping us maintain and innovate. Thank you to everyone who buys Credits in the MW iOS app, TRIVILATOR, and MagicRace!
The Season Two cover is revealed through an epic trailer--a tribute to Walt Disney. Check it out below and go here to get more info on MouseWait's hit series Deadliest Cast Member. Follow us on Facebook here.
GOAT EFFECT is finally here for iOS! #SaveTheGoat by knocking the dynamite out of his mouth and see how high you can run your score up! Press on your High Score on the main page to see where you rank in Game Center. Have fun!
La Brea Bakery is the Official Restaurant of MouseWait! Thank you for supporting our partners. Join us Tuesdays 8pm at La Brea for Sticker Night. La Brea offers MouseWaiters a 15% discount during official MouseWait Meetups (Sticker Nights every Tuesday night, and other meetups that we announce in the Lounge).
DISCOUNTED DISNEYLAND TICKETS THROUGH MOUSEWAIT! You get 2% off select tickets if you purchase on this page and use the code MOUSEWAIT at checkout. A percentage of your total purchase comes back to MouseWait, which helps cover our monthly maintenance and development expenses! You will also get 100 Credits if you email us your receipt along with your username!
*Disneyland Park will close early on Wednesday for a media event regarding the 60th Anniversary announcement. In spite of short park hours, DCA will remain open until 10pm that evening.
Attraction Closures: Critter Country (closed until April), Disneyland Railroad (closed until Feb. 13), "its a small world" (closed until Feb. 6), Matterhorn Bobsleds (closed until May), Sleeping Beauty Castle (closed until March 3), Snow White Grotto (closed until May), Grizzly River Run (closed until March 20), Redwood Creek Challenge Trail (closed until March 13), Soarin' over California (closed until May).
"Cinderella" Special Sneak Peak in the "Tough to be a Bug" Theater starting Friday, January 30th. Check the MW News section for details.
This week's Wednesdays with Walt AP Event will feature "Man into Space". Event will take place at various times in the Main Street Opera House. With a valid AP, present it to a CM at the entrance of the Opera House for an event wristband.
unForecast Crowd Prediction: Expect it to be quiet this week with CIs in the 50s-high 60s. Expect it to be busy in the park late Wednesday afternoon as the media and others will be coming in for the 60th Anniversary announcement and media event. For the weekend, expect it to be moderately quiet with CIs in the 60s to high 70s.