Our Dearest Mousewait Family,
I would like to give you an update on Princess Daisy Rachel Young. First and foremost I sincerely apologize for not giving frequent updates, but this whole situation has been a nonstop rollercoaster of emotions and changes which in turn has made it extremely difficult to live a normal life, let alone report to not only our Mousewait family, but our own family and friends as well and for that I apologize. Most of my time is spent filling out forms, making numerous phone calls, following up on phone calls, waiting for phone calls, banging on doors to get an answer and or a reply and mostly being jerked around as the answers and replies seem to change on a daily or weekly basis. That being said, I would like to share with you what is going on with Rachel.
Those of you who may or may not know about a month ago she was staying at rehabilitation center called Health South here in Albuquerque. She was scheduled to return home (though still very injured) on May 15th as that was when her Medicaid would kick in, however someone dropped the ball over there and when the paper work was finalized, it issued her only “Institutional” Medicaid which means that she is only covered as long as she is in some sort of medical facility, so if she went home she would lose all medical coverage, what we applied for was “Community” Medicaid which means that she would be covered outside of a medical facility. We were told by the Health South case worker that the only way to remedy this would be for her to do a 30 day stint in a skilled nursing facility in which during that time the mistake would be rectified and she could come home on June 16th with full medical coverage as her community Medicaid would kick in.
A week before she was set to be discharged we started to order her equipment she we would need to return home as per instructed by the case worker (wheelchair, toilet bars, shower bars, ramps, meds, ect.). it was at this time that they informed us that we were misinformed by the caseworker at health south and that she yet again dropped the ball and forgot a to implement a very important step in the discharge process. Because of this, the 30 day stint was not to remedy the institutional-community Medicare problem, but in fact only puts her at the top of the WAITING LIST for community Medicaid. So now she has to wait 60-90 more days for her community Medicaid to kick in. At this time she may leave the facility, however she will have no coverage for 60 to 90 days while this process is pending.
As desperately as we want her home, this is simply something we cannot afford to do, as she needs meds and outpatient therapy especially a certain machine that electrically stimulates her nerves to keep her legs from COMPLELETLY atrophying. To add insult to injury, during this 60-90 day process she is NOT allowed to leave the facility (we are fighting this as well as dozens of other things). Everyone there is allowed “day passes” where they are allowed to leave the facility for hours at a time, but because her coverage is pending, Medicaid does not want to allow her to leave as it will compromise or hinder the process. Basically they see it as if she is well enough to leave for a couple of hours then they feel she does not need coverage (but yet she is allowed to go home and wait for the coverage?) This makes no sense.
So this is where we are with that whole process. She is still not home and will not be home till the earliest August 18th to September 18th but at this point who knows because every time we get a date we it changes. I wish they would comprehend the psychological toll this is taking on Rachel getting her hopes up and down and having to be cooped up all day in an environment of ill, and angry elderly people.
As for Rachel, she is making the most of it. Through all this Rachel has maintained a positive and cheerful attitude because that is who she is! Though she is injured herself she is brining what joy she can to the residents there. She plays bingo with them she helps do their nails for them, she plays games with them and just visits with those who are lonely and don’t get many visitors, anything she can do to lighten their lives a little. Everyone there just loves her! (CAN YOU BLAME THEM? DUHH!?). She has become quite close with some of the residents; sadly one of the women there that she became very close with had lung cancer and passed away yesterday while Rachel was holding her hand. Her name was Sherri Jaramillo, and Rachel spent very last moment with her while she was passing. I like to think that Rachel kept her with us longer.
As for Rachel’s progress it is there have been some highs and lows. The great news is that her left leg is getting stronger! Though she is not able to use either, she has made huge leaps forward as she can lift it a little bit and uses it to stand for a moment when she transfers out of her wheelchair!!! The bad news is that the right leg is not making any progress and on top of that it is causing a valve in her hear to slow down and not work properly which is causing erratic blood pressure and could be detrimental, but the doctors think that with exercise and proper diet it will heal (no Tigger tails for a while I guess!).
In closing things are slowing down. It is possible that we may have an answer to the day passes this week as well as her custom wheelchair may arrive and she will be more comfortable and not have to continue to use the bulky 60 pound model she has now. From our family to all of yours thank you for your continuous prayers, thoughts CARDS and GIFTS words cannot express how much it means to us when she receives them!!! You are all so generous and words cannot express how grateful and moved we are by all of you. I want you to know that you all are one of (if not the biggest, after Prayer and our Lord and savior) contributing factor to the mental health and stability of Rachel! You all make her feel extremely loved and cared for and fill her life with so much hope and happiness which in turn, helps her to heal physically! Thank you all, God Bless you all and know how much we love you!!! Please continue to pray that the Medicaid process goes quickly, and that she continues to heal mentally and physically, that her legs work again so she may walk, so she may run, so she can stay all day in the sun, wandering free, just like she used to be, a part of our world, and that this Disney princess may be rescued and live happily ever after!!!! AMEN
Hi Chris and Rachel, it is not too long as it tells us everything!
Please keep fighting and we are all behind you! and with all of us
praying for you all, you know there will be a miracle still! I think
God has Rachel there as while she is trying to get better, she can give
love and help those others who don't have anyone to help them. I know
being in there can be depressing for anyone so she is like a light for
those people right now and it will probably help her forever to want to
help them which will help her get better too! I love you guys, and will
pray the problems all disappear so Rachel can come home. Thank you
Lord for these wonderful children of Yours. Please help all the
medicaid issues be resolved and please heal every muscle, fiber, bone,
everything that has been injured in Rachel and give her strength always
to keep fighting to get better. And help all those helping her to find
the right way to get her home. and thank You Lord for this, and for
them being such a wonderful inspiration to the rest of here in their
MouseWait family. In Jesus's name, Amen. We Love you Chris and Rachel
and all your family - secretagentangel
665.4 #156 12:41PM
That's sort of a common issue....those workers are so over worked with clients. I had a cubicle next to them and their desks were covered in files. That being said, I think she is still needed there to help cheer people up and heal. She is an angel in disguise - KissDclown
1088.1 #77 8:29PM
Thank you always for the updates even when you got a full plate at the moment. I'm so sorry to hear about how Medicaid is jerking poor Rachel around at the moment. I can only imagine the frustration you must feel and Rachel is such a trooper to maintain a positive attitude through it all. I never cease to keep the two of you in my thoughts. I continually hope and pray for the best for the both of you and will continue to do so. Hang in there!! - Aquata
292.2 #659 1:11AM
Keep on fighting. She is in my prayers and gets all of the pixie dust that I have thrown her way. - Slotherini
882.4 #99 12:19PM
I hope everything starts to work out for you guys. I will keep you guys in my prayers - B_Ryee
5.1 #10254 12:24PM
You guys are always in my prayers. Keep hope love & pixie dust in your hearts and remember you guys are missed. God works in mysterious ways keep your head up. Love and pixie dust ✨✨✨ - Singh2011
178.5 #1881 12:33PM
oh, and please DM me or duckiefan for their address, and we will send it to you if you want to send them anything! - secretagentangel
665.4 #156 12:44PM
Hahahaha I don't know what DM means im still new to this whole thing! I want to post a picture and another update pertaining to duckiefan and many others but I don't know how? Little help??? Our address is:
10700 Academy RD NE APT# 811 Albuquerque NM 87111 - Angry Donald 26.8 #4531 12:57PM
DM is just a direct message for mw'ers to talk to each other, lookup a username and you will see DM on their options. I am glad you posted your address it helps people find it easier! you can add a comment to your post to update or you can press t e for and it - secretagentangel 665.4 #156 1:16PM
Sorry, you can press the e for it editing your post. you can post photos but only through your phone and it has to be a new post. if you sent me an email I will send you those photos I told you about. we also took a photo at the reunion holding donald and daisy dolls t show you were there in our hearts - secretagentangel 665.4 #156 1:19PM
Thank you for the update! I'm so sorry about the frustration that you two must be feeling, but I'm am positive that everything will be okay! I'm a believer that everything happens for a reason, so maybe Rachel is supposed to be in the facility to touch the others patients lives. Keep staying positive, and I'll keep you both in my thoughts! - ladylikesdisney
921.5 #95 12:46PM
wow! prayer and pixie dust coming you way! head up and stay strong! - wendytink
311.4 #550 12:46PM
I'm so sorry she is not home yet. I will continue to pray for her and hope she gains all the strength she needs. I will also pray for you and that you draw all the strength you need to be there for her. You are both in my thoughts always and anything you need please feel free to ask. Thank you for the update and I send you lots and lots of pixie dust! ✨💗💗💗✨ - Aurora_2020
257.8 #927 12:49PM
What a trooper. Hang in there, you two. Things WILL get better, though it may be a slow road. Keep the faith and know the support you have beside you if you ever need it. All the healing thoughts in the world to the both of you from me and the rest of us here. Faith, trust, and pixie dust. :) - flukefan
266.4 #860 12:52PM
Stay strong! You are both in my prayers. I'm happy to hear that Rachel is getting stronger and staying in good spirits. It sounds like God had a plan and Rachel is an angel, touching the precious lives of those around her. She is a true blessing and is showing us that we all need to remember to enjoy life and those around us. ✨🌟 - Vegan7LuvsStitch
799.0 #116 1:18PM
I know this is easier said than done and the whole process is frustrating but try to focus on the fact that SHE WILL BE HOME. Try to focus on the fact that she is there with you and that you can see her everyday! Everything else is replaceable (money!) but not her life! She is always in my prayers, as well as her family. Stay strong!! :) - kss4tink
216.8 #1393 1:25PM
Never lose hope! She will be in my prayers and all of my pixie dust will go her way! ✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨ - scrumpy325
28.0 #4472 1:28PM
Prayers and hugs being sent your way! Never give up!🙏✨ - JessM4
269.5 #827 7:29PM
Thank you for the update. Of course continued prayers and positive energy for you and Rachel. Sorry you have to go thru all this messy stuff along with wanting what is best for Rachel.I hope you received my package. It was supposed to arrive by now. - Dizkid
284.2 #703 7:47PM
Still praying! We pray often for you and Rachel! Thank you for the update! Sending love and pixie dust your way!
✨🌟✨🌟✨🌟✨🌟✨🌟✨🌟 - Minnis2Society
360.0 #388 7:48PM
I very much appreciate the update, I know you are busy and it was so nice of you to write this up for everyone. I am sorry about all the frustration (My family is going through this too) and I really hope things go well for you guys from this point on. I wish you all the best! - Sheilamo
318.2 #525 8:08PM
Hang in there brother. I think about you two all the time. So I truly appreciate the update. I pray the next comes with word that all of medical red tape has been sniped. I have seen this first hand and know the frustrations you are dealing with. Like I've said before you are the rock and you will stand firm for Rachel as you have. Please give her a hug and a smile for me. We all love you both never forget that. Now give'em hell bud, kill'em with kindness and take no prisoners and when you need back up we got ya. }:) - Evilstitch
328.4 #481 8:16PM
Thanks for the update. I can't imagin the frustration you and Rachel are feeling now. I'm still praying for her. Is there anything MWers can do for you? - Mrs.mouse
420.4 #306 8:18PM
(((((a big hug for you and Rachel))))). Unfortunately I've been in your situation, it's hard when you do everything you are supposed to do and it still turns out in a different direction. I know it's hard even when you keep records of conversations and commitments and later they are not honored and it seems like no one cares. But remember WE care!! Eventually things will start happening in a positive way! We will be ready to celebrate with you b
ut until then please dont give up!! We care about you both
so much!! Please let us know what you need and we will
be there for you. Always. Do not hesitate to ask, please.
Thank YOU Chris for all you do for Rachel! Please give her a big hug from us.
hug for us. - PrincessDuckie
584.1 #187 8:23PM
Thanks for the update. I've had you both on my mind this past week. I can feel your frustration, and will continue to pray for a resolution to your insurance woes, for continued healing, and for Rachel's speedy homecoming. Sending you love and best wishes. - Juliebird
249.6 #1009 1:04AM
So happy to hear from you! We are all still praying everyday for Rachel and your family! You don't need to apologize to us for not being able to update us much- we all know that you need to focus on Rachel and her needs! But we all truly appreciate the updates whenever you do get the chance- as we all love to hear about her progress. I will continue to pray for you all. Hopefully the medicade (sp) stuff will get sorted out soon so Rachel can go home!! God bless you all- we love you!!💚 - soccerash21
3.7 #14996 3:23AM