Post detail
125.3 #2640 (DL Qual #2381)
May 29, 2012 7:06 PM
Hello everyone. My upcoming trip in June will be my first of many trips in a wheelchair. Earlier this year, not long after I turned 40, I was diagnosed with Ehlers-danlos syndrome. Basically my connective tissue doesn't hold my joints in place so they dislocate. For those of you who are wheelchair bound, any recommendations? Thank you.
Make sure to get the guest assitance card that will allow u to go thru the exit - princessVanessa
382.5 #351 7:43PM
Thank you both for the helpful tips! - TamiLovesDisney 125.3 #2640 8:14PM
I'm sorry to hear about your diagnosis. Don't be afraid to ask for what you need. There are nurses on staff at the first aid center on main street. They are so helpful and kind. - Mrs.mouse
420.5 #306 9:28PM
Thank you Mrs.Mouse - TamiLovesDisney 125.3 #2640 7:08AM
Wow. I'm sorry that your EDS is so severe. My daughter Allison (4) has been diagnosed with a mild case of EDS. She goes to physical therapy once a week now. We do have a GAC for her because sometimes standing in long lines is tough for her. CMs have been great when I asked for a GAC for her. Just let them know you have EDS and why it's hard for you to stand in line. - Sandcar13
1329.7 #60 9:41PM
Oh my I am so very sorry your daughter has this too! Poor thing. Bless her heart I hope the pt helps her feel better. Thank you for your response and information you passed along. Maybe someday soon my family can meet your family and your precious Allison. I have a 4 year old myself, and a 9, 12, and 18 year old :) - TamiLovesDisney 125.3 #2640 7:07AM
How strange my comment disappeared. Oh well, you read it and that is what matters, enjoy your trip!! - Linzee
515.8 #226 7:12AM
The best advice we received was from Sugarbuzz here on MW. She recommended a ROHO cushion for my husband's comfort. Insurance should cover it as it is pricey. - SeñorBuzz&Jessie
62.4 #3525 8:00AM
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